Rose Nacheca continues to adjust to life in America beautifully! She is saying so many new words everyday!
She goes back to Children's tomorrow afternoon to start some tests. They are going to do some blood work to check for chromosome abnormalities that could explain her size. They will also be testing her IGF-1 and IGFBP-3 (that is what Michelle is deficient in.) Both Michelle and Rose Nacheca will have x-rays tomorrow as well. It is time for Michelle's annual bone age and Rose Nacheca will have an x-ray of the left side of her body to look at the growth plates.
Thursday she will go to the orthopedic doctor to look at her legs. It looks like one of her legs and one of her arms are longer than the other. I want to buy her some tennis shoes but if the difference is significant enough she will need to have a lift built into the shoe of the shorter leg. This would help with her spine as well.
There was a problem with our insurance AGAIN so Michelle is still only one growth hormone. She is still doing great on it but we would really like to get the Increlex started up before school starts so that we can deal with the blood sugar issues as she adjusts here at home rather than at school!
Thanks for the prayers. We are all enjoying watching Rose Nacheca experience all of these new things! At the same time we are showing her pictures of her family at OLTCH everyday and she loves seeing them! Speaking of OLTCH please pray for them. They got heavy rains and it flooded them a bit. Their generator went underwater so it is not working. Without a generator they do not have electricity or running water. Living in Haiti it is hard to find a new generator. God will provide though I am confident!
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