Rose Nacheca had her appointment with the Infectious Disease doctor today. I have been dreading this appointment for the last 10 days since we heard her test results. I had feared the worst and it turned out I worried for nothing.
Rose Nacheca has indeed had CMV at some point. This doctor though seems to have serious doubts that it was during the first trimester of her mothers pregnancy with her. She does have some characteristics of congenital CMV but she is NOT severely affected. Things could have been so much worse. At this point the biggest concern is her hearing. They set us up with an appointment with an audiologist in November to see how well she hears. They ordered some other blood tests to check how some organs are functioning but overall he is VERY happy with how she looks :) He really thinks she will do just fine!!!!
So I guess we go back to the endocrinologist to pursue the low IGF-1 and IGFBP-3 levels. The next step for her is a MRI. Not too sure when that will happen yet. Hopefully soon!
Thanks for the prayers!!! She has been sick since Friday. She has had a cold, fever and stuffy runny nose, and now she has an ear infection again. So hopefully with the new antibiotic she will start feeling better (and sleeping better LOL) really soon!!!
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